Wrong Pre-op?? What????

Well I must say yesterday was an exhausting day for all of us at the hospital. It was really wonderful to have my best friend Trish there with me the whole time. Ron was also there with us. Every day I see them together just really is showing me how much he loves April and will be there for her no matter what. He makes her laugh when she is down and brings that beautiful smile out of her when no body else can. He also loves Miracle. That you can tell by his eyes lighting up when he talks about her and by the pictures he takes of her. She loves him too which is awesome.
We started our day at the hospital at the wrong pre-op.(of course). We were there an hour before they told us we should be at a different part of the hospital. So off we went to a part of the hospital we hadn't been before. Didn't know they had an electric car service(live and learn). Went to the right pre-op and waited there of course. Then found out we had to go back to where we were the first time for the surgery. WOW... Talk about confusing.. Then she finally went back to get prepped for surgery and a trauma comes in.. What was scheduled at 10:30 was moved to 3:00. And April hadn't had anything to eat or drink since 12 midnight the night before so she was starving and thirsty.. At 2 they finally came and Trish had went to get her daughter Danielle(Aprils best friend) to be there when she got out. It didn't take long and she was done. The tube replaced and hopefully this one will last. Ron took her home and she ate and slept last night. Today is painful for her but I hope it will not last long. I know I have talked about the support that we receive from family and friends in almost every post but I can't say it enough to make people understand the importance of having that wonderful support system. Having my husband just let me cry and just holding me, my best friend when I call and say" I am having a moment" just tell me "it's ok you can have a moment", and family wanting to know how everything is going and letting me know they are there if I need them. That is what gets me through some of the rough spots so far. There will be plenty of them ahead and I know I have the right people standing right beside me and if I need them to they will carry me through.. Love to all and God Bless all my family, friends and people who have prayed and are continuing to pray for us..Thank you.

cross your fingers and toes..

Well we should have known things were going too well... April has a clog in her tube and she has an appointment Thursday at 10:30. That wasn't so bad til they emailed her and said to be in pre-op at 7:15. So we don't know what is going to happen,hopefully they can do a quick fix..(Fingers and toes crossed). She has just gotten Miracle back and was gaining weight. Her 1st appointment at the Center is tomorrow and I will be watching Miracle for her so I am seeing my girls tomorrow. Thursday will be a early morning for us both. We just have to know that everything will be fine and I know it will. I just wanted a rest for April. Love to all and God Bless.

HOT,HOT,HOT...

Wow, this was a HOT weekend outside. We went to the Bash and had a great time. We couldn't really go outside much because it was really too hot for April to be out there but we still managed to have fun. Traci did a wonderful job of getting alot of the family together and the food was wonderful. We had Miracle and she was so happy to be with her Mommy she didn't want anyone else. When she went to take a nap she wanted mommy and gamma so we both layed down on the bed with her in the middle. She just scooted next to her mom and fell right asleep. It was so amazing to see those two together when just a month ago I was wondering if I would see it again. But God answered our prayers and we Thank Him for it.. April is 92 pounds so the feeding tube is doing it's job which is a blessing. We really have to get this

fundraising into high gear to get the dates set for the yard sale and then for the BBQ plates we are planning to sale. There is so much involved that it is sometimes overwhelming but I have the most amazing support system in the world.. Family and Friends. They pull me through when I would probably crumble. I don't think that I could make it through this journey without them. You never know how much you need family and friends until something happens and you do. Then you thank God everyday for them. So just remember if you have a disagreement or argument with a family member that one day you really might need them or they really might need you and that argument won't even matter. Don't sweat the small stuff. People say it all the time and trust me it is true. Just let the little things roll off your back and keep on going.. Love to all and God Bless..

Thank God for Friday..

Well it has been a day. April had a slight accident with the tube when she pulled it out a bit. She is OK but it was very painful. Hopefully that won't happen any more but I am glad she is OK.. Tomorrow is the Big Bash at Traci's and I am excited. She has put so much into this and I know it will be great. Family and friends together with good food you can't ask for more than that. In the morning April will be picking up Miracle and meeting us at Golden Corral for breakfast. She loves their breakfast. So if that is where she wants to eat then that is where we will go. Then she will be visiting with us til the Bash. I will be sure to write all about it and take plenty of pictures for all to see.. Love to all and God Bless..

The dress....

I must say this has been a day. Got up and went to see April. She called last night to tell me her wedding dress was ready..WHAT????? This would be the dress that was purchursed last year when we thought she and Demetrius were going to be married. I don't know why but it really made me sad. I know how happy she was to be getting married and how excited. But I also know that he wasn't the right person for her. She is with the right person now. Demetrius will always be a part of our family because of Miracle but Ron truly loves April and is STANDING BESIDE HER. She truly feels safe and happy and as a mother you can't ask for any more than that. To have the person that you love the most standing with you and supporting you is priceless and that is what he is doing. So a big thank you to Ron for being there for my

Baby.. April is fighting with everything she has and she needs the person she loves to be fighting with her and he is..
So switching subjects hopefully we will have the shirts by next Friday so the family can start wearing them. We will be having another meeting soon to decide the day of the yard sale and hopefully the day to sale chicken plates. So much going on and I wouldn't be able to do it without my family and friends.. All my friends who have gathered around us are a true blessing and I can't say it enough.. So thank you to all.. Your support and prayers mean the world to us.. Love to all and God Bless

Thinking and Planning

Well so hopefully we have the T-shirt situation figured out and my sister Donna is handling getting that pulled together. I will be so glad to have the shirts so we can get the word out about April and her transplant. So many people have been so wonderful and supportive that it makes you feel so loved. I know that a lot of people know April through me,my husband(Andy),her dad and members of our families but they have responded with such enthusiasm and an outpouring of love and concern. April will be starting her intensive rehabilitation next week. She is learning how to work with the feeding tube overnight for 12 hours and eating regularly during the day. You never know how people will react or respond when they find out news of an illness in a co-worker's family more especially a child of a co-worker. It has been such a blessing to know that my co-workers have just embraced me and April, asking if they can do anything or if we need anything. When you know you have such wonderful people around you in your workplace it truly helps. To know that when they ask "How are you?" and they really want to know, not just making conversation, is wonderful. I can't say enough how blessed we are to have the people around us that we do. Someone else I really want to talk about is Maryann Deans. A sweeter and more open person you will never meet. She is an inspiration to April and me. She went through a double lung transplant 5 years ago and is doing GREAT....She has said she would be my backup for April when the time comes and she has helped April tremendously with her knowledge of what will be happening and when. She knows what April is feeling and thinking because she was there and felt those same things. She is going to be a tremendous help in the coming months with the amount of things we will have to be learning and doing. So a big "THANK YOU" to Maryann for everything. More later. God Bless and love you all.

Tuesday and another day of work. Did housework at home and then went to my sister's house. If was nice to spend time with Sissey just us there to talk. Had lunch and invited Traci but she was having Pizza at work. We will be planning another meeting to firm up some of the ideas for the fundraisers and plan a date for the yard sale. Hopefully T-shirts will be here soon. I think that is going to be a great thing for us to do. Everyone is asking about the t-shirts and looks like a bunch of people will be wanting one. So on we go.. Not seeing April today and I am missing her after seeing her every day almost for 3 weeks. Hopefully things will be on track for all she has to get done and we will start to see the results of the feeding tube. All for now. Bless everyone..

Home at last..

Well it is Monday and I am at work after getting up and picking up all of April's medications this morning. Thank God for Traci and Zebulon Drug they worked hard getting all the medications filled so I could get them to April. April finally got the real PORTABLE O2 not a big tank on wheels. So if she needs to she can go somewhere on O2 much easier. She isn't on the oxygen right now so that is awesome but if she needs it she has it. We went and had lunch with Trish and Danielle at Apple-bee's and it was great to spend time with them outside of the hospital. It has been 3 weeks and it was GREAT to get out of Duke. I know if it was good to me it was wonderful to April. The first fundraiser meeting was Sunday and there were some great ideas. Traci will be setting up a face book page for the fundraiser times and places so I will be posting that as soon as it is up. More later. Love to all..Breathe easy April. I love you.

Post feeding tube..

I am at the hospital with April and her boyfriend Ron is here with her. She tolerated her Therapy this morning and did her morning nebs. She is sleeping again and I am just watching her breathe. She is breathing so much easier now and so am I. When we came in her breathing was so labored her whole body was working to help her breathe. To see her now just laying and sleeping and now laboring for breath is a blessing. I wanted so much to just take her place and let her take mine. I am sure that is what all mothers with a sick child want but the Lord will take care of my baby for me so we will be fine..

The tube is placed and she is in her room and resting. It was so good to see her face after the surgery and she was smiling(probably because of the pain meds. but I will say it was to see us). Now she just has to gain the weight and get muscled up for the next part. Her breathing is great right now and hopefully it will stay that way for a while.. More later.

Getting the tube.

Wow, I guess they heard how upset I was when they took her the last time,and they didn't do it because they were there early to pick her up today. She was taken down and we have seen her in pre-op and now she has gone to surgery. There are no words to describe how a mother feels when she knows her child will be put to sleep for surgery. It is more dangerous for April because of the CF. With her breathing the way it is they said she could have the breathing tube in longer if she has trouble breathing after the surgery. This is just the small one before the major one so maybe I can have time to get ready for it,though I don't think I will ever be ready for her to have a major surgery like a double lung transplant. But we know this is the only option right now for her with her lungs in the shape they are.. I could tell she was so scared and just wanting it over but they is nothing I could do but tell her I love her and kiss her goodbye. Saying prayers now and I will have more later..

Ready for the Tube

Well hopefully tomorrow is the day for the feeding tube placement. So I will be up early and going to Duke to be with April and her boyfriend Ron in the morning..Spent some time with April and Ron today at the hospital and I have to say seeing them together is so awesome to watch. He loves her so much and she loves him right back. Knowing she has this wonderful man in her life makes me so happy. To know she has found the person who she knows will be there for her(and has shown it during this hospital stay)makes my heart happy.. This is a hard thing for anyone but for someone who has to watch a person they love struggle is incomprehensible. He has shown me that I can trust him to watch out for and care for my baby. So I am proud to call him a future son-in-law.. I know they will marry someday and be so very happy. Love to all and more later.

It is Tuesday night and I am at work thinking about all the people in my life who support me no matter what. My husband,Andy,is the best man I know.. He is always making sure that I am doing what I need to do for April. Not matter what that comes first. To be so supported by your spouse and know that they will be there no matter what is such a comfort that I don't know what I would do without him. Family has always been so precious to me and now they just surround us with love,support,and anything we need. Friends are the ones you can really cry,scream,or just sit quietly with and I would be lost without my best friend Trish. She knows me. I don't have to say something is wrong she can tell by the tone of my voice.. so to all my special people this is for you..
I LOVE YOU ALL.... THANK YOU.

My first Blog of April's Journey

Hi my name is Pinkey and I am going to try to write about my daughter's journey toward a double lung transplant. Her name is April Nicole Wagner and she is 25 years old. She has a 2 year old daughter named Miracle. April has Cystic Fibrosis and is at the point where her lungs are really bad. This last hospital stay was very rough and I sometimes questioned if she would get through it. But my girl is tough.. She fought back and is so much better now and has started the evaulation process for the lung transplant at Duke. There are so many things that have to be done but I am grateful for all the family and friends we have around us to support and help us. This has been a long 2 weeks with the drive every day to Duke to be with April but I wouldn't have it any other way. So keep up and I will let you know about our journey as it continues.. So it begins..